Twenty percent of Estonia’s population has genetic data stored in the Estonian biobank —yet the potential of this data remains largely untapped.
Currently, gene and health data are not easily accessible to Estonian companies for research and development. Additionally, even with donor consent, doctors cannot directly request genetic data from the biobank for use in a patient’s personalized treatment plan. Although individuals can request their own data from the gene bank and share it with their doctor, this process adds unnecessary bureaucracy.
In collaboration with Antegenes, Accelerate Estonia is exploring the legal and bureaucratic obstacles to using genetic data in personalized medicine and how overcoming these barriers could open new doors for the future of healthcare.